Sally Hofmeister, born in the UK but has lived in Germany for most of her life. I have four adult children, one daughter and three sons, the youngest of which has DMD and is 32 years old; he lives independently with full-time assistance. I also have three grandsons and two granddaughters and another grandson on the way. I am not a carrier of the faulty gene am very grateful that all my other children and grandchildren are healthy.

I have been involved in the DMD field since my son was diagnosed in 1993, was a founding member of the German parent organization and served on it’s board for 10 years, and was a founding member of the World Duchenne Organization (formerly UPPMD) and have served on the board since 2007.Since 2018 my main focus has been setting up and running the Duchenne Community Advisory Board.

Συμμετοχές – Χορηγίες
Χρυσούλα Κορδούλη, T: 210 6617777 (εσωτ. 204) | E: [email protected]
Νίκος Τσάκωνας, M. 693 6123475 | E: [email protected]

Περιεχόμενο
Ναταλία Τουμπανάκη, T: 210 6617 777 (εσωτ. 289) | M: 6947936708 | E: [email protected]
Ρενάτα Βαλσαμή, T: 210 6617 777 (εσωτ. 289) | M: 6944940915 | E: [email protected]