09.15 – 09.30 | OPENING REMARKS |
“Patient centricity in the Post – Covid era” Katerina Koutsogianni, President Hellenic Patients Association (EAE), President, Panhellenic Federation of Associations of Patients, Parents, Guardians and Friends of Children with Rheumatic Diseases (RevMazin) |
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09.30 – 10.30 |
SESSION 1 | EU PLANNING AND STRATEGY TO ADVANCE PATIENT CENTRICITY |
Moderator: | Dimitris Athanasiou, PDCO Member, European Medicines Agency – EURORDIS, Member of the Board of WDO, EPF and GPA |
“European Commission Regulation and Patient Centricity” Dirk Van den Steen, Deputy Head of Unit in B1, DG SANTE Health Systems, Medical Products and Innovation, European Commission |
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“Patient involvement in HTA, pricing and reimbursement: where it starts, where is it going?” Matteo Scarabelli, Patient Engagement Manager – HTA, EURORDIS |
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“Patients’ involvement in the regulatory pathway” Juan García Burgos, Head of Public and Stakeholders Engagement Department, Stakeholders and Communication Division, European Medicines Agency (EMA) |
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Discussion – Q&A | |
10.30 – 12.00 |
SESSION 2 | PATIENT CENTRICITY AS A NATIONAL PRIORITY |
Moderator & Speaker: | Kyriakos Souliotis, Professor of Health Policy, School of Social and Political Sciences, University of Peloponnese |
“Patients in the Center as a National Priority” Vassilis Kontozamanis, Alternate Minister of Health, Greece |
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Panel Discussion | “Patient Empowerment is the pathway for a sustainable and an effective Healthcare System”
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Discussion – Q&A | |
12.00 – 12.30 | Expo – Networking Break |
12.30 – 14.00 |
SESSION 3 | EMPOWERED PATIENT MEANS INFORMED PATIENT – THE WAY TO ACHIEVE IT |
Moderator: | Christos Lionis, MD, Professor of General Practice and Primary Health Care, Head of Clinic of Social and Family Medicine, Faculty of Medicine, University of Crete |
Keynote Speech | “Engaging patients as partners in data collection for registries, patient reported outcomes” Pablo Botas, CEO & Head of Science, Foundation 29 |
“Means to develop qualified patients for Health Technology Assessment” Nikos Dedes, Secretary General, Greek Patients Association (EAE), Chair ‘Positive Voice’ Association of HIV Positive People in Greece |
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“The role of educated patient expert in the HC System” Mary Adamopoulou, President “95” Rare Alliance Greece, EUPATI Fellow |
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“Training Patients to Improve Disease Management” George Mazarakis, Managing Director, PCC HELLAS |
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“New technologies in the service of patients: RWE” Elena Petelos, Co-Chair of RWE and Artificial Intelligence (AI) for HTAi, Vice President HTA Section, European Public Health Association (EUPHA) |
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“Data Fragmentation as a Barrier to Patient Centricity & Empowerment” Dimitra Lingri, Co-Chair of RWE and Artificial Intelligence (AI) for HTAi, Managing Director at European Healthcare Fraud and Corruption Network (EHFCN) |
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Discussion – Q&A | |
14.00 – 14.30 | Expo – Networking Break / LUNCH BREAK |
14.30 – 16.00 |
SESSION 4 | INVOLVING PATIENTS IN RESEARCH |
Moderator: | Evangelia Koraki, President of the CRO’s – HACRO Association, President and CEO of “CORONIS Research” |
Keynote Speech | “Working in Partnership with patients in Research: The CAB example” Sally Hofmeister, Duchenne CAB Coordinator |
“Working in Partnership with Patients for better clinical trials” Martine Dehlinger-Kremer, Vice President of Scientific Affairs, Pediatric Subject Matter Expert, PRA Health Sciences, Center for Pediatric Clinical Development, President EUCROF, Chair of the Children Medicines Working Party, European Forum for Good Clinical Practice (EFGCP) |
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“Real World Evidence: Generating them in partnership with patients” Kyriaki Bakirtzi, Academic Program Coordinator, Panhellenic Pharmaceutical Association (PEF) |
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“How can we leverage innovative solutions in AI and Machine Learning?” Anastasia Krithara, Post-Doc Researcher at IIT of NCSR “Demokritos” in Athens, Member of Software and Knowledge Engineering Laboratory (SKEL) |
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Discussion – Q&A | |
16.00 | Conclusions |
*The Agenda is under development.